About Cystic Fibrosis Australia

Cystic Fibrosis Australia (CFA) is a national body comprising Cystic Fibrosis (CF) state organisations. CFA develops national fundraising events, educational programs, collects and distributes information on CF and undertakes lobbying and advocacy at national and international levels. This allows member organisations to focus on supplying quality health and welfare services to children and young adults living with CF and their families.

A major task of the national office is to secure the funds and professional expertise necessary to conduct research into CF, its cause and eventual cure. The research program is conducted through the Australian Cystic Fibrosis Research Trust (ACFRT), which operates within the CFA corporate structure.

CFA receives no government funding, relying on fundraising events such as 65 Roses Day, The Great Escape Car Rally and donations to fund major projects.

Another major focus for CFA is the Cystic Fibrosis National Data Registry (NDR). The NDR is a complete statistical record of all people in Australia with CF. The registry enables us to care for people who suffer from CF and to monitor disease progression and morality on a national scale. This also involves genetic research and allows study into the impact of new treatments and technology. The registry also assists multi-centre trials, nationally and internationally.

Aim

  • To facilitate and promote the provision of optimal care to all people affected by CF and ensure they have the best possible quality of life.

Mission

CFA represents and promotes the interests of people with CF, their families and carers by:

  • Raising awareness and educating
  • Advocating and lobbying, and
  • Promoting CF Research in order to enhance the well-being of the CF Community.

Vision

  • A society committed to curing CF, while providing the best possible care and quality of life for people with CF.

Objectives

  • To promote change in federal policies or laws which are prejudicial to the rights or well-being of people with CF.
  • To be a co-ordinating body in the production and dissemination of national and international developments on research and matters of interest to CF organisations.
  • To build an international network of contacts with acclaimed Cystic Fibrosis researchers, centres of learning and kindred organisations.
  • To administer national research monies.
  • To administer national community awareness and education programs.
  • To administer, with co-operation of the States, national fundraising efforts and programs.

You can find out more about Cystic Fibrosis Australia and our State organisations by clicking here.



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About Cystic Fibrosis Australia
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Joels Story

Testimonials

“My life has been personally touched by CF and as Ambassador for Cystic Fibrosis Australia I want to encourage everyone to support this year’s 65 Roses Day. Raised funds will go towards vital research and creating a better quality of life for those living with CF.”

Pro Golfer Scott Draper – CFA Ambassador


National Sponsor of
Cystic Fibrosis Australia