Good Friday!

Thu, 05 Apr 2012 23:04:00 GMT

Last night was a quite night at home with the girlfriend. Watched a great movie which went till about midnight. By then I am having trouble containing my cough and really need to do my therapy and meds before bed. So I disappear into my 'cave' (full of drugs and medical devices) and do what I have to do each night,... It was about 130am by the time I sneaked into the bedroom and quietly went to bed next to my partner.

First thing in the morning, about 7am, I wake up, and need to cough. Waking up is always like that, with a cough. Hard to sleep in. Very tired I crawl out of bed and head for the 'cave' again. I do my meds, and am wide awake by 8am. No more sleeping for me.

One day it would be lovely to go to sleep at the same time as my girlfriend and wake up with my girlfriend without always needing to go 'cough'. It is no point doing the therapy straight after dinner as dinner will 'come up' again with the coughing, huffing and puffing. Hard to get the timing right for treatment isn't it, and it sure spoils the mood. Now let's think about easter buns and eggs! Happy Easter weekend folks!

Coming Soon!

Tue, 27 Mar 2012 07:13:00 GMT

This year's 65 Roses Day celebrations will include blogs from some of Australia's favourite CF'ers. They will take us inside their lives to help us understand life with Cystic Fibrosis, its challenges and triumphs, and just what's possible with a bit of persistance and passion.

Living with CF Blog

Good Friday!

Coming Soon!