CYSTIC FIBROSIS PROGRAMS
Funds raised through 65 Roses Day will contribute to the success of the following programs.
QUALITY OF CARE
CFA released a groundbreaking document in 2008 called the CF Standards of Care. This document for the first time laid out optimal conditions to achieve the best outcomes for those with CF In terms of services, staff and facilities. Essentially this publication was a quality-assurance document that the CF doctors wanted to ensure that they were providing the best care. All clinics are now undertaking the process to see how they compare, and will make any necessary improvements. CFA is assisting in the process and we endeavor to complete the accreditation in 36 months. This process has already been completed with success in the USA, Canada, UK and Europe.
In short, this program has the goal of ensuring the best care for those with CF, regardless of where they live in Australia.
DATA REGISTRY
Did you know that Cystic Fibrosis Australia runs one of the most advanced CF data registries in the world? Data registries might sound boring, but they are an incredibly powerful tool in the fight against CF! They are used for identifying the most effective treatments for each patient through the process of discovering best practices. Read More.
RESEARCH
“Viral burden in infants with Cystic Fibrosis.” – Funded by the LJ Hooker CF Research Trust - $91,906 Read More.
“Development of noval assay for the detection of clonal P. Aeruginosa in persons with CF.” – $68,950 Read More.
“Trial of nebulised 0.0% vs 6% saline for people with cystic fibrosis.” – $95,723 Read More.
CF-IDEA (Cystic Fibrosis – Insulin Deficiency, Early Action) – $49,459.50 Read More.
Join AUSTRALIA'S HUNT FOR ROSES
FREE TO ENTER
Hidden around Australia are 65 capsules each contain secret rose tokens. Get clues, collect a token and register online to become eligible for major prizes drawn on 65 Roses Day.
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Our CF heroes are also just Heroes! They deal with more on a daily basis, than anything we are ever likely to encounter in our lifetime. The way in which every person I have ever met dealing with CF attacks life, is something that is truly inspirational. We can all take a leaf out of their book and make the most of every day. Make it count. Please support CF on 65 Roses Day, to positively impact the lives of those less fortunate than ourselves.
Scott Draper Read More >>| 21-Feb-2012 | Walter, your positivity is inspiring - and absolutely essential!; you are living proof that determination and positivity and healthy living can keep the disease at bay! You give hope to me and my little baby. Thank you and keep up the good fight!more » Natalie Halpin, Brisbane, Australia |
